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Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children

Exome sequencing is being offered for children with undiagnosed conditions to identify a primary (causative) variant. Parental preferences for learning secondary (incidental) variants are largely unexplored. Our objective was to characterize values and beliefs that shape parents’ preferences for lea...

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Detalhes bibliográficos
Main Authors: Sapp, Julie C., Dong, Danielle, Stark, Caryn, Ivey, Lauren E., Hooker, Gillian, Biesecker, Leslie G., Biesecker, Barbara B.
Formato: Artigo
Idioma:Inglês
Publicado em: 2013
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3930614/
https://ncbi.nlm.nih.gov/pubmed/24033230
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/cge.12254
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