Quality of Life and its Determinants in a Multi-Center Cohort of Children with Alagille Syndrome

OBJECTIVES: To assess health-related quality of life (HRQOL) in children with Alagille syndrome (ALGS) in comparison with healthy and other liver disease cohorts, and to identify determinants of HRQOL in patients with ALGS. STUDY DESIGN: Within the Childhood Liver Disease Research Network prospectiv...

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Gepubliceerd in:J Pediatr
Hoofdauteurs: Kamath, Binita M., Chen, Zhen, Romero, Rene, Fredericks, Emily M., Alonso, Estella M., Arnon, Ronen, Heubi, James, Hertel, Paula M., Karpen, Saul J., Loomes, Kathleen M., Murray, Karen F., Rosenthal, Philip, Schwarz, Kathleen B., Subbarao, Girish, Teckman, Jeffrey H., Turmelle, Yumirle P., Wang, Kasper S., Sherker, Averell H., Sokol, Ronald J., Magee, John C.
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: 2015
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Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4516587/
https://ncbi.nlm.nih.gov/pubmed/26059338
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jpeds.2015.04.077
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