Quality of Life and its Determinants in a Multi-Center Cohort of Children with Alagille Syndrome

OBJECTIVES: To assess health-related quality of life (HRQOL) in children with Alagille syndrome (ALGS) in comparison with healthy and other liver disease cohorts, and to identify determinants of HRQOL in patients with ALGS. STUDY DESIGN: Within the Childhood Liver Disease Research Network prospectiv...

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Udgivet i:J Pediatr
Main Authors: Kamath, Binita M., Chen, Zhen, Romero, Rene, Fredericks, Emily M., Alonso, Estella M., Arnon, Ronen, Heubi, James, Hertel, Paula M., Karpen, Saul J., Loomes, Kathleen M., Murray, Karen F., Rosenthal, Philip, Schwarz, Kathleen B., Subbarao, Girish, Teckman, Jeffrey H., Turmelle, Yumirle P., Wang, Kasper S., Sherker, Averell H., Sokol, Ronald J., Magee, John C.
Format: Artigo
Sprog:Inglês
Udgivet: 2015
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4516587/
https://ncbi.nlm.nih.gov/pubmed/26059338
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jpeds.2015.04.077
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