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The use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia

PURPOSE: To assess the utility of US health insurance data for surveillance of hereditary hemorrhagic telangiectasia, an autosomal-dominant blood vasculature disorder with an estimated prevalence of 1.5–2.0 per 10,000 persons worldwide. METHODS: We used 2005–2010 MarketScan Research Databases to ide...

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書誌詳細
出版年:Genet Med
主要な著者: Grosse, Scott D., Boulet, Sheree L., Grant, Althea M., Hulihan, Mary M., Faughnan, Marie E.
フォーマット: Artigo
言語:Inglês
出版事項: 2013
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC4453870/
https://ncbi.nlm.nih.gov/pubmed/23703685
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2013.66
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