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Sharing My Health Data: A Survey of Data Sharing Preferences of Healthy Individuals

We interviewed 70 healthy volunteers to understand their choices about how the information in their health record should be shared for research. Twenty-eight survey questions captured individual preferences of healthy volunteers. The results showed that respondents felt comfortable participating in...

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Detalhes bibliográficos
Publicado no:AMIA Annu Symp Proc
Main Authors: Bell, Elizabeth A., Ohno-Machado, Lucila, Grando, M. Adela
Formato: Artigo
Idioma:Inglês
Publicado em: American Medical Informatics Association 2014
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4419941/
https://ncbi.nlm.nih.gov/pubmed/25954442
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