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Sharing My Health Data: A Survey of Data Sharing Preferences of Healthy Individuals

We interviewed 70 healthy volunteers to understand their choices about how the information in their health record should be shared for research. Twenty-eight survey questions captured individual preferences of healthy volunteers. The results showed that respondents felt comfortable participating in...

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Bibliografiske detaljer
Udgivet i:AMIA Annu Symp Proc
Main Authors: Bell, Elizabeth A., Ohno-Machado, Lucila, Grando, M. Adela
Format: Artigo
Sprog:Inglês
Udgivet: American Medical Informatics Association 2014
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4419941/
https://ncbi.nlm.nih.gov/pubmed/25954442
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