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Innovation by patients with rare diseases and chronic needs

ABSTRACT: We provide the first empirical exploration of disease-related innovation by patients and their caregivers. Our aims were to explore to what degree do patients develop innovative solutions; how many of these are unique developments; and do these solutions have positive perceived impact on t...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Oliveira, Pedro, Zejnilovic, Leid, Canhão, Helena, von Hippel, Eric
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2015
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4404234/
https://ncbi.nlm.nih.gov/pubmed/25887544
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-015-0257-2
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