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Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study
BACKGROUND: In the absence of a cure for the majority of rare diseases, the disease management aims to provide optimal supportive care. The goal of this study was to assess supportive care needs in patients with chronic rare diseases. METHODS: Cross-sectional mixed-method study was conducted using v...
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| Publicado en: | Orphanet J Rare Dis |
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| Autores principales: | , , , , , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
BioMed Central
2021
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7825171/ https://ncbi.nlm.nih.gov/pubmed/33482869 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01660-w |
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