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Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study

BACKGROUND: In the absence of a cure for the majority of rare diseases, the disease management aims to provide optimal supportive care. The goal of this study was to assess supportive care needs in patients with chronic rare diseases. METHODS: Cross-sectional mixed-method study was conducted using v...

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Publicado en:Orphanet J Rare Dis
Main Authors: Depping, Miram K., Uhlenbusch, Natalie, von Kodolitsch, Yskert, Klose, Hans F. E., Mautner, Victor-Felix, Löwe, Bernd
Formato: Artigo
Idioma:Inglês
Publicado: BioMed Central 2021
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Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC7825171/
https://ncbi.nlm.nih.gov/pubmed/33482869
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01660-w
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