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Ethics of genetic and biomarker test disclosures in neurodegenerative disease prevention trials

OBJECTIVE: Prevention trials for neurodegenerative diseases use genetic or other risk marker tests to select participants but there is concern that this could involve coercive disclosure of unwanted information. This has led some trials to use blinded enrollment (participants are tested but not told...

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Bibliografiska uppgifter
I publikationen:Neurology
Huvudupphovsmän: Kim, Scott Y.H., Karlawish, Jason, Berkman, Benjamin E.
Materialtyp: Artigo
Språk:Inglês
Publicerad: Lippincott Williams & Wilkins 2015
Ämnen:
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC4395889/
https://ncbi.nlm.nih.gov/pubmed/25762713
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0000000000001451
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