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Ethics of genetic and biomarker test disclosures in neurodegenerative disease prevention trials

OBJECTIVE: Prevention trials for neurodegenerative diseases use genetic or other risk marker tests to select participants but there is concern that this could involve coercive disclosure of unwanted information. This has led some trials to use blinded enrollment (participants are tested but not told...

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Detaylı Bibliyografya
Yayımlandı:Neurology
Asıl Yazarlar: Kim, Scott Y.H., Karlawish, Jason, Berkman, Benjamin E.
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: Lippincott Williams & Wilkins 2015
Konular:
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC4395889/
https://ncbi.nlm.nih.gov/pubmed/25762713
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0000000000001451
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