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Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities

Recently, public concerns have been expressed regarding the non-consented storage and secondary research uses of residual newborn bloodspot (RBS) samples. The purpose of this paper is to examine public responses to the storage and secondary uses of RBS that can be identified through analysis of medi...

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Detalhes bibliográficos
Publicado no:J Community Genet
Main Authors: Cunningham, Shannon, O’Doherty, Kieran C., Sénécal, Karine, Secko, David, Avard, Denise
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2014
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4356669/
https://ncbi.nlm.nih.gov/pubmed/25533753
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-014-0206-0
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