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Connecting patients, researchers and clinical genetics services: the experiences of participants in the Australian Ovarian Cancer Study (AOCS)
Population-based genetic research may produce information that has clinical implications for participants and their family. Researchers notify participants or their next of kin (NoK) about the availability of genetic information via a notification letter; however, many subsequently do not contact a...
Kaydedildi:
Yayımlandı: | Eur J Hum Genet |
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Asıl Yazarlar: | , , , , , , , , , |
Materyal Türü: | Artigo |
Dil: | Inglês |
Baskı/Yayın Bilgisi: |
Nature Publishing Group
2015
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Konular: | |
Online Erişim: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4297914/ https://ncbi.nlm.nih.gov/pubmed/24824132 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2014.86 |
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