The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration

Lignende værker

• EPIRARE survey on activities and needs of rare disease registries in the European Union
  af: Taruscio, Domenica, et al.
  Udgivet: (2012)
• Characterization and classification of Rare Disease Registries by using exploratory data analyses
  af: Coi, Alessio, et al.
  Udgivet: (2014)
• European Project for Rare Diseases National Plans Development (EUROPLAN)
  af: Taruscio, Domenica, et al.
  Udgivet: (2010)
• The Italian National Rare Diseases Registry
  af: Taruscio, Domenica, et al.
  Udgivet: (2014)
• The Occurrence of 275 Rare Diseases and 47 Rare Disease Groups in Italy. Results from the National Registry of Rare Diseases
  af: Taruscio, Domenica, et al.
  Udgivet: (2018)