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Impact of Pre-Symptomatic Testing for Familial Amyotrophic Lateral Sclerosis
PURPOSE: Pre-fALS is a longitudinal study of individuals potentially at risk for developing familial amyotrophic lateral sclerosis (fALS). Our goals were to: 1) explore participants’ decisions whether or not to learn results of pre-symptomatic testing; 2) understand the psychosocial impact of these...
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| Autori principali: | , , , , , |
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| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
2011
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4039017/ https://ncbi.nlm.nih.gov/pubmed/21285887 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/GIM.0b013e318204d004 |
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