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Impact of Pre-Symptomatic Testing for Familial Amyotrophic Lateral Sclerosis

PURPOSE: Pre-fALS is a longitudinal study of individuals potentially at risk for developing familial amyotrophic lateral sclerosis (fALS). Our goals were to: 1) explore participants’ decisions whether or not to learn results of pre-symptomatic testing; 2) understand the psychosocial impact of these...

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Main Authors: Fanos, Joanna H., Gronka, Susan, Wuu, Joanne, Stanislaw, Christine, Andersen, Peter M., Benatar, Michael
格式: Artigo
語言:Inglês
出版: 2011
主題:
在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC4039017/
https://ncbi.nlm.nih.gov/pubmed/21285887
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/GIM.0b013e318204d004
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