Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

BACKGROUND: International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on d...

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Main Authors: Marsh, Vicki, Kombe, Francis, Fitzpatrick, Raymond, Williams, Thomas N, Parker, Michael, Molyneux, Sassy
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2013
Teme:
Research Article
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC4016314/
https://ncbi.nlm.nih.gov/pubmed/24125465
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6939-14-41
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