Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

BACKGROUND: International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on d...

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Main Authors: Marsh, Vicki, Kombe, Francis, Fitzpatrick, Raymond, Williams, Thomas N, Parker, Michael, Molyneux, Sassy
Formato: Artigo
Idioma:Inglês
Publicado: BioMed Central 2013
Assuntos:
Research Article
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4016314/
https://ncbi.nlm.nih.gov/pubmed/24125465
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6939-14-41
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