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Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

BACKGROUND: International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on d...

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主要な著者: Marsh, Vicki, Kombe, Francis, Fitzpatrick, Raymond, Williams, Thomas N, Parker, Michael, Molyneux, Sassy
フォーマット: Artigo
言語:Inglês
出版事項: BioMed Central 2013
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC4016314/
https://ncbi.nlm.nih.gov/pubmed/24125465
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6939-14-41
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