Social Media Methods for Studying Rare Diseases

For pediatric rare diseases, the number of patients available to support traditional research methods is often inadequate. However, patients who have similar diseases cluster “virtually” online via social media. This study aimed to (1) determine whether patients who have the rare diseases Fontan-ass...

Disgrifiad llawn

Wedi'i Gadw mewn:
Manylion Llyfryddiaeth
Prif Awduron: Schumacher, Kurt R., Stringer, Kathleen A., Donohue, Janet E., Yu, Sunkyung, Shaver, Ashley, Caruthers, Regine L., Zikmund-Fisher, Brian J., Fifer, Carlen, Goldberg, Caren, Russell, Mark W.
Fformat: Artigo
Iaith:Inglês
Cyhoeddwyd: American Academy of Pediatrics 2014
Pynciau:
Special Article
Mynediad Ar-lein:https://ncbi.nlm.nih.gov/pmc/articles/PMC4006435/
https://ncbi.nlm.nih.gov/pubmed/24733869
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2013-2966
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