Social Media Methods for Studying Rare Diseases

For pediatric rare diseases, the number of patients available to support traditional research methods is often inadequate. However, patients who have similar diseases cluster “virtually” online via social media. This study aimed to (1) determine whether patients who have the rare diseases Fontan-ass...

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Detalhes bibliográficos
Main Authors: Schumacher, Kurt R., Stringer, Kathleen A., Donohue, Janet E., Yu, Sunkyung, Shaver, Ashley, Caruthers, Regine L., Zikmund-Fisher, Brian J., Fifer, Carlen, Goldberg, Caren, Russell, Mark W.
Formato: Artigo
Idioma:Inglês
Publicado em: American Academy of Pediatrics 2014
Assuntos:
Special Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4006435/
https://ncbi.nlm.nih.gov/pubmed/24733869
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2013-2966
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