Meeting the Privacy Requirements for the Development of a Multi-Centre Patient Registry in Canada: The Rick Hansen Spinal Cord Injury Registry

Privacy legislation addresses concerns regarding the privacy of personal information; however, its interpretation by research ethics boards has resulted in significant challenges to the collection, management, use and disclosure of personal health information for multi-centre research studies. This...

Full description

Saved in:
Bibliographic Details
Main Authors: Noonan, Vanessa K., Thorogood, Nancy P., Joshi, Phalgun B., Fehlings, Michael G., Craven, B. Catharine, Linassi, Gary, Fourney, Daryl R., Kwon, Brian K., Bailey, Christopher S., Tsai, Eve C., Drew, Brian M., Ahn, Henry, Tsui, Deborah, Dvorak, Marcel F.
Format: Artigo
Language:Inglês
Published: Longwoods Publishing 2013
Subjects:
Research Paper
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC3999529/
https://ncbi.nlm.nih.gov/pubmed/23968640
Tags: Add Tag
No Tags, Be the first to tag this record!

Similar Items