Meeting the Privacy Requirements for the Development of a Multi-Centre Patient Registry in Canada: The Rick Hansen Spinal Cord Injury Registry

Privacy legislation addresses concerns regarding the privacy of personal information; however, its interpretation by research ethics boards has resulted in significant challenges to the collection, management, use and disclosure of personal health information for multi-centre research studies. This...

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Detalhes bibliográficos
Main Authors: Noonan, Vanessa K., Thorogood, Nancy P., Joshi, Phalgun B., Fehlings, Michael G., Craven, B. Catharine, Linassi, Gary, Fourney, Daryl R., Kwon, Brian K., Bailey, Christopher S., Tsai, Eve C., Drew, Brian M., Ahn, Henry, Tsui, Deborah, Dvorak, Marcel F.
Formato: Artigo
Idioma:Inglês
Publicado em: Longwoods Publishing 2013
Assuntos:
Research Paper
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3999529/
https://ncbi.nlm.nih.gov/pubmed/23968640
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