How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry

There is consensus internationally that research participants should be offered the opportunity to receive clinically relevant genetic information identified through research, but there is little empirical peer-reviewed work documenting this process. We report the experience of conducting genetic re...

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Detalhes bibliográficos
Main Authors: Keogh, Louise A., Fisher, Douglass, Sheinfeld Gorin, Sherri, Schully, Sheri D., Lowery, Jan T., Ahnen, Dennis J., Maskiell, Judith A., Lindor, Noralane M., Hopper, John L., Burnett, Terrilea, Holter, Spring, Arnold, Julie L., Gallinger, Steven, Laurino, Mercy, Esplen, Mary-Jane, Sinicrope, Pamela S.
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2013
Assuntos:
Original Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3955463/
https://ncbi.nlm.nih.gov/pubmed/23703702
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-013-0148-y
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