How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry

There is consensus internationally that research participants should be offered the opportunity to receive clinically relevant genetic information identified through research, but there is little empirical peer-reviewed work documenting this process. We report the experience of conducting genetic re...

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Bibliografiska uppgifter
Huvudupphovsmän: Keogh, Louise A., Fisher, Douglass, Sheinfeld Gorin, Sherri, Schully, Sheri D., Lowery, Jan T., Ahnen, Dennis J., Maskiell, Judith A., Lindor, Noralane M., Hopper, John L., Burnett, Terrilea, Holter, Spring, Arnold, Julie L., Gallinger, Steven, Laurino, Mercy, Esplen, Mary-Jane, Sinicrope, Pamela S.
Materialtyp: Artigo
Språk:Inglês
Publicerad: Springer Berlin Heidelberg 2013
Ämnen:
Original Article
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC3955463/
https://ncbi.nlm.nih.gov/pubmed/23703702
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-013-0148-y
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