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Development of the Huntington Disease Family Concerns and Strategies Survey From Focus Group Data

Health concerns and management strategies among families of young and middle-age adults with Huntington’s disease (HD) are unknown. This study developed and tested psychometric properties of the Huntington Disease Family Concerns and Strategies Survey (HDFCSS). Focus group data from 91 adult family...

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Bibliographische Detailangaben
Hauptverfasser: Williams, Janet K., Barnette, J. Jackson, Reed, David, Sousa, Valmi D., Schutte, Debra L., McGonigal-Kenney, Meghan, Jarmon, Lori, Phillips, Emily, Tripp-Reimer, Toni, Paulsen, Jane S.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2010
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3807610/
https://ncbi.nlm.nih.gov/pubmed/20806651
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