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Experiences of teens living in the shadow of Huntington Disease

Research on families with Huntington Disease (HD) has primarily focused on adult decision-making surrounding predictive genetic testing and caregiver stress. Little is known about the experiences of teens living in these families. This qualitative study explored the experiences of 32 teens living in...

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Detalhes bibliográficos
Main Authors: Sparbel, Kathleen J. H., Driessnack, Martha, Williams, Janet K., Schutte, Debra L., Tripp-Reimer, Toni, McGonigal-Kenney, Meghan, Jarmon, Lori, Paulsen, Jane S.
Formato: Artigo
Idioma:Inglês
Publicado em: 2008
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC2811873/
https://ncbi.nlm.nih.gov/pubmed/18347962
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10897-008-9151-6
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