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Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants

Progress in the debate over returning incidental findings (IFs) and individual research results (IRRs) to research participants who provide specimens and data to biobanks in genetic and genomic research requires a new tool to allow comparison across heterogeneous biobank research systems and in-dept...

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Autors principals: Bemmels, Heather R., Wolf, Susan M., Van Ness, Brian
Format: Artigo
Idioma:Inglês
Publicat: 2012
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC3754832/
https://ncbi.nlm.nih.gov/pubmed/22382801
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2011.69
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