National Variation in Costs and Mortality for Leukodystrophy Patients in U.S. Children’s Hospitals

BACKGROUND: Inherited leukodystrophies are progressive, debilitating neurological disorders with few treatment options and high mortality rates. Our objective was to determine national variation in the costs for leukodystrophy patients, and to evaluate differences in their care. METHODS: We develope...

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Autori principali: Brimley, Cameron J, Lopez, Jonathan, van Haren, Keith, Wilkes, Jacob, Sheng, Xiaoming, Nelson, Clint, Korgenski, E. Kent, Srivastava, Rajendu, Bonkowsky, Joshua L.
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2013
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC3748620/
https://ncbi.nlm.nih.gov/pubmed/23953952
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pediatrneurol.2013.06.006
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