National Variation in Costs and Mortality for Leukodystrophy Patients in U.S. Children’s Hospitals

BACKGROUND: Inherited leukodystrophies are progressive, debilitating neurological disorders with few treatment options and high mortality rates. Our objective was to determine national variation in the costs for leukodystrophy patients, and to evaluate differences in their care. METHODS: We develope...

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Main Authors: Brimley, Cameron J, Lopez, Jonathan, van Haren, Keith, Wilkes, Jacob, Sheng, Xiaoming, Nelson, Clint, Korgenski, E. Kent, Srivastava, Rajendu, Bonkowsky, Joshua L.
Format: Artigo
Sprog:Inglês
Udgivet: 2013
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3748620/
https://ncbi.nlm.nih.gov/pubmed/23953952
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pediatrneurol.2013.06.006
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