Return of Individual Research Results from Genome-wide Association Studies: Experience of the Electronic Medical Records & Genomics (eMERGE) Network

PURPOSE: Return of individual genetic results to research participants, including participants in archives and biorepositories, is receiving increased attention. However, few groups have deliberated on specific results or weighed deliberations against relevant local contextual factors. METHODS: The...

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Main Authors: Fullerton, Stephanie M., Wolf, Wendy A., Brothers, Kyle B., Clayton, Ellen Wright, Crawford, Dana C., Denny, Joshua C., Greenland, Philip, Koenig, Barbara A., Leppig, Kathleen A., Lindor, Noralane M., McCarty, Catherine A., McGuire, Amy L., McPeek Hinz, Eugenia R., Mirel, Daniel B., Ramos, Erin M., Ritchie, Marylyn D., Smith, Maureen E., Waudby, Carol J., Burke, Wylie, Jarvik, Gail P.
Format: Artigo
Language:Inglês
Published: 2012
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Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC3723451/
https://ncbi.nlm.nih.gov/pubmed/22361898
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2012.15
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