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Involvement of Patient Organisations in Research and Development of Orphan Drugs for Rare Diseases in Europe

Patients’ representatives have an increasingly present voice in all aspects of drug development from fundamental research through regulatory processes to health technology assessment. Although major advances have been made in raising awareness and increasing funding for rare diseases, important chal...

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Bibliografische gegevens
Hoofdauteurs: Mavris, M., Le Cam, Y.
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: S. Karger AG 2012
Onderwerpen:
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3531929/
https://ncbi.nlm.nih.gov/pubmed/23293582
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000342758
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