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Involvement of Patient Organisations in Research and Development of Orphan Drugs for Rare Diseases in Europe

Patients’ representatives have an increasingly present voice in all aspects of drug development from fundamental research through regulatory processes to health technology assessment. Although major advances have been made in raising awareness and increasing funding for rare diseases, important chal...

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Detalhes bibliográficos
Main Authors: Mavris, M., Le Cam, Y.
Formato: Artigo
Idioma:Inglês
Publicado em: S. Karger AG 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3531929/
https://ncbi.nlm.nih.gov/pubmed/23293582
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000342758
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