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Involvement of Patient Organisations in Research and Development of Orphan Drugs for Rare Diseases in Europe
Patients’ representatives have an increasingly present voice in all aspects of drug development from fundamental research through regulatory processes to health technology assessment. Although major advances have been made in raising awareness and increasing funding for rare diseases, important chal...
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| Main Authors: | , |
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| 格式: | Artigo |
| 語言: | Inglês |
| 出版: |
S. Karger AG
2012
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| 主題: | |
| 在線閱讀: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3531929/ https://ncbi.nlm.nih.gov/pubmed/23293582 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000342758 |
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