Professional clinical guidelines for rare diseases: methodology

Eitemau Tebyg

• Developing methodology for the creation of clinical practice guidelines for rare diseases: A report from RARE-Bestpractices
  gan: Pai, Menaka, et al.
  Cyhoeddwyd: (2015)
• Clinical Practice Guidelines for Rare Diseases: The Orphanet Database
  gan: Pavan, Sonia, et al.
  Cyhoeddwyd: (2017)
• The Italian project to increase health professionals’ training and awareness on rare diseases
  gan: Bellagambi, Simona
  Cyhoeddwyd: (2012)
• Methodological Rigour and Transparency of Clinical Practice Guidelines Developed by Neurology Professional Societies in Croatia
  gan: Tudor, Katarina Ivana, et al.
  Cyhoeddwyd: (2013)
• Reflection on clinical and methodological issues in rare disease clinical trials.
  gan: Johan Verbeeck, et al.
  Cyhoeddwyd: (2025-06-01)