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Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research

BACKGROUND: Massively-parallel sequencing (MPS) technologies create challenges for informed consent of research participants given the enormous scale of the data and the wide range of potential results. DISCUSSION: We propose that the consent process in these studies be based on whether they use MPS...

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Hlavní autoři: Facio, Flavia M, Sapp, Julie C, Linn, Amy, Biesecker, Leslie G
Médium: Artigo
Jazyk:Inglês
Vydáno: BioMed Central 2012
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3495642/
https://ncbi.nlm.nih.gov/pubmed/23046515
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1755-8794-5-45
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