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Parent Perspectives on Pediatric Genetic Research and Implications for Genotype-driven Research Recruitment

As genetic research is increasingly conducted in children, it is important to understand how parents make decisions about enrolling their children and what they think about receiving their children’s genetic research results. We conducted semi-structured phone interviews with 23 parents of children...

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Autores principales: Tabor, Holly K., Brazg, Tracy, Crouch, Julia, Namey, Emily E., Fullerton, Stephanie M., Beskow, Laura M., Wilfond, Benjamin S.
Formato: Artigo
Lenguaje:Inglês
Publicado: 2011
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Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC3426316/
https://ncbi.nlm.nih.gov/pubmed/22228059
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2011.6.4.41
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