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Informed Consent for Whole Genome Sequencing: A Qualitative Analysis of Participant Expectations and Perceptions of Risks, Benefits, and Harms

Scientific evidence on the extent to which ethical concerns about privacy, confidentiality, and return of results for whole genome sequencing (WGS) are effectively conveyed by informed consent (IC) is lacking. The aim of this study was to learn, via qualitative interviews, about participant expectat...

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Detalhes bibliográficos
Main Authors: Tabor, Holly K., Stock, Jacquie, Brazg., Tracy, McMillin, Margaret J., Dent., Karin M., Yu, Joon-Ho, Shendure, Jay, Bamshad, Michael J.
Formato: Artigo
Idioma:Inglês
Publicado em: 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3426313/
https://ncbi.nlm.nih.gov/pubmed/22532433
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.35328
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