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Informed Consent for Whole Genome Sequencing: A Qualitative Analysis of Participant Expectations and Perceptions of Risks, Benefits, and Harms

Scientific evidence on the extent to which ethical concerns about privacy, confidentiality, and return of results for whole genome sequencing (WGS) are effectively conveyed by informed consent (IC) is lacking. The aim of this study was to learn, via qualitative interviews, about participant expectat...

תיאור מלא

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מידע ביבליוגרפי
Main Authors: Tabor, Holly K., Stock, Jacquie, Brazg., Tracy, McMillin, Margaret J., Dent., Karin M., Yu, Joon-Ho, Shendure, Jay, Bamshad, Michael J.
פורמט: Artigo
שפה:Inglês
יצא לאור: 2012
נושאים:
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC3426313/
https://ncbi.nlm.nih.gov/pubmed/22532433
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.35328
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