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Epilepsy Patient-Participants and Genetic Research Results as “Answers”

Better understanding of how research participants with a known condition ascribe meaning to individual genetic results is important to help researchers and institutional review boards evaluate the potential benefits and harms of disclosing results in the context of genotype-driven research recruitme...

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Bibliografiske detaljer
Main Authors: Namey, Emily E., Beskow, Laura M.
Format: Artigo
Sprog:Inglês
Udgivet: 2011
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3399113/
https://ncbi.nlm.nih.gov/pubmed/22228057
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2011.6.4.21
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