Factors that Influence Parents’ Experience with Results Disclosure after Newborn Screening Identifies Genetic Carrier Status for Cystic Fibrosis or Sickle Cell Hemoglobinopathy

OBJECTIVES: Newborn screening (NBS) identifies genetic carriers for sickle cell hemoglobinopathy and cystic fibrosis. We aimed to identify factors during initial NBS carrier results disclosure by primary care providers (PCPs) that influenced parents’ experiences and reactions. METHODS: Open-ended re...

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Bibliographic Details
Main Authors: Collins, Jenelle L., La Pean, Alison, O’Tool, Faith, Eskra, Kerry L., Roedl, Sara J., Tluczek, Audrey, Farrell, Michael H.
Format: Artigo
Language:Inglês
Published: 2012
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Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC3328613/
https://ncbi.nlm.nih.gov/pubmed/22240007
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pec.2011.12.007
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