Factors that Influence Parents’ Experience with Results Disclosure after Newborn Screening Identifies Genetic Carrier Status for Cystic Fibrosis or Sickle Cell Hemoglobinopathy

OBJECTIVES: Newborn screening (NBS) identifies genetic carriers for sickle cell hemoglobinopathy and cystic fibrosis. We aimed to identify factors during initial NBS carrier results disclosure by primary care providers (PCPs) that influenced parents’ experiences and reactions. METHODS: Open-ended re...

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Huvudupphovsmän: Collins, Jenelle L., La Pean, Alison, O’Tool, Faith, Eskra, Kerry L., Roedl, Sara J., Tluczek, Audrey, Farrell, Michael H.
Materialtyp: Artigo
Språk:Inglês
Publicerad: 2012
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Article
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC3328613/
https://ncbi.nlm.nih.gov/pubmed/22240007
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pec.2011.12.007
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