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Quantitative telemedicine ratings in Batten disease: Implications for rare disease research

OBJECTIVE: To determine if remote administration of the Unified Batten Disease Rating Scale (UBDRS) Physical Impairment subscale by telemedicine is reliable and feasible across a broad range of disease severity. METHODS: For the majority (n = 10) of subjects, the examination was performed by a nonph...

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Bibliografische gegevens
Hoofdauteurs: Cialone, J., Augustine, E.F., Newhouse, N., Vierhile, A., Marshall, F.J., Mink, J.W.
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: Lippincott Williams & Wilkins 2011
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Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3233206/
https://ncbi.nlm.nih.gov/pubmed/22013181
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e3182377e29
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