Experience, Knowledge, and Opinions about Childhood Genetic Testing in Batten Disease

BACKGROUND AND OBJECTIVES: Policies for genetic testing in children (GTIC) focus on medical or psychosocial benefit to the child, discouraging or prohibiting carrier testing, and advising caution regarding pre-symptomatic diagnosis if no treatment exists. This study sought to understand parents’ per...

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Detalhes bibliográficos
Main Authors: Adams, Heather R., Rose, Katherine, Augustine, Erika F., Kwon, Jennifer M., deBlieck, Elisabeth A., Marshall, Frederick J., Vierhile, Amy, Mink, Jonathan W., Nance, Martha A.
Formato: Artigo
Idioma:Inglês
Publicado em: 2013
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3919022/
https://ncbi.nlm.nih.gov/pubmed/24246680
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ymgme.2013.10.017
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