Living with myotonic dystrophy; what can be learned from couples? a qualitative study

BACKGROUND: Myotonic dystrophy type 1 (MD1) is one of the most prevalent neuromuscular diseases, yet very little is known about how MD1 affects the lives of couples and how they themselves manage individually and together. To better match health care to their problems, concerns and needs, it is impo...

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Autores principales: Cup, Edith HC, Kinébanian, Astrid, Satink, Ton, Pieterse, Allan J, Hendricks, Henk T, Oostendorp, Rob AB, van der Wilt, Gert Jan, van Engelen, Baziel GM
Formato: Artigo
Lenguaje:Inglês
Publicado: BioMed Central 2011
Materias:
Research Article
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC3158552/
https://ncbi.nlm.nih.gov/pubmed/21752270
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1471-2377-11-86
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