Living with myotonic dystrophy; what can be learned from couples? a qualitative study

BACKGROUND: Myotonic dystrophy type 1 (MD1) is one of the most prevalent neuromuscular diseases, yet very little is known about how MD1 affects the lives of couples and how they themselves manage individually and together. To better match health care to their problems, concerns and needs, it is impo...

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Detalhes bibliográficos
Main Authors: Cup, Edith HC, Kinébanian, Astrid, Satink, Ton, Pieterse, Allan J, Hendricks, Henk T, Oostendorp, Rob AB, van der Wilt, Gert Jan, van Engelen, Baziel GM
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2011
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Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3158552/
https://ncbi.nlm.nih.gov/pubmed/21752270
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1471-2377-11-86
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