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"Fighting the system": Families caring for ventilator-dependent children and adults with complex health care needs at home

BACKGROUND: An increasing number of individuals with complex health care needs now receive life-long and life-prolonging ventilatory support at home. Family members often take on the role of primary caregivers. The aim of this study was to explore the experiences of families giving advanced care to...

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Autors principals: Dybwik, Knut, Tollåli, Terje, Nielsen, Erik W, Brinchmann, Berit S
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2011
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Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC3146406/
https://ncbi.nlm.nih.gov/pubmed/21726441
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6963-11-156
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