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"Fighting the system": Families caring for ventilator-dependent children and adults with complex health care needs at home

BACKGROUND: An increasing number of individuals with complex health care needs now receive life-long and life-prolonging ventilatory support at home. Family members often take on the role of primary caregivers. The aim of this study was to explore the experiences of families giving advanced care to...

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Αποθηκεύτηκε σε:
Λεπτομέρειες βιβλιογραφικής εγγραφής
Κύριοι συγγραφείς: Dybwik, Knut, Tollåli, Terje, Nielsen, Erik W, Brinchmann, Berit S
Μορφή: Artigo
Γλώσσα:Inglês
Έκδοση: BioMed Central 2011
Θέματα:
Διαθέσιμο Online:https://ncbi.nlm.nih.gov/pmc/articles/PMC3146406/
https://ncbi.nlm.nih.gov/pubmed/21726441
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6963-11-156
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