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Parents' Decisions to Screen Newborns for FMR1 Gene Expansions in a Pilot Research Project
OBJECTIVE: The goal of this study was to document rates of parental consent in a pilot study of newborn screening for FMR1 gene expansions, examine demographic characteristics of mothers who consented or declined, describe the reasons for their decision, and discuss ethical and social aspects of the...
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| Hauptverfasser: | , , , , , , , |
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| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
American Academy of Pediatrics
2011
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3103273/ https://ncbi.nlm.nih.gov/pubmed/21624881 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2010-3078 |
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