Obtaining Consent from Both Parents for Pediatric Research: What Does “Reasonably Available” Mean?

OBJECTIVE: Circumstances surrounding parental availability and decision-making were examined in the setting of a research protocol involving newborn screening (NBS) for fragile X syndrome, in which the institutional review board (IRB) had determined that consent (permission) was required from both p...

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Autori principali: Nelson, Daniel K., Skinner, Debra, Guarda, Sonia, Choudhury, Summer, Sideris, John, Barnum, Leah, Ten Haagen, Kristy, Heyward, Quetrell, Bailey, Donald B.
Natura: Artigo
Lingua:Inglês
Pubblicazione: American Academy of Pediatrics 2013
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC3529951/
https://ncbi.nlm.nih.gov/pubmed/23266920
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2012-1278
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