Ethical and Practical Guidelines for Reporting Genetic Research Results To Study Participants: Updated Guidelines from an NHLBI Working Group

In January 2009 the National Heart, Lung, and Blood Institute (NHLBI) convened a 28-member multidisciplinary Working Group to update the recommendations of a 2004 NHLBI Working Group focused on Guidelines to the Return of Genetic Research Results. Changes in the genetic and societal landscape over t...

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Main Authors: Fabsitz, Richard R., McGuire, Amy, Sharp, Richard R., Puggal, Mona, Beskow, Laura M., Biesecker, Leslie G., Bookman, Ebony, Burke, Wylie, Burchard, Esteban Gonzalez, Church, George, Clayton, Ellen Wright, Eckfeldt, John H., Fernandez, Conrad V., Fisher, Rebecca, Fullerton, Stephanie M., Gabriel, Stacey, Gachupin, Francine, James, Cynthia, Jarvik, Gail P., Kittles, Rick, Leib, Jennifer R., O’Donnell, Christopher, O'Rourke, P. Pearl, Rodriguez, Laura Lyman, Schully, Sheri D., Shuldiner, Alan R., Sze, Rebecca K.F., Thakuria, Joseph V., Wolf, Susan M., Burke, Gregory L.
Formato: Artigo
Idioma:Inglês
Publicado: 2010
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Article
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC3090664/
https://ncbi.nlm.nih.gov/pubmed/21156933
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1161/CIRCGENETICS.110.958827
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