Glad you asked: Participants' Opinions of Re-Consent for dbGaP Data Submission

No consensus exists about when researchers need additional participant consent (re-consent) to submit existing data to the federal database of Genotypes and Phenotypes (dbGaP). Reconsent for submission of their data to dbGaP was sought from 1,340 study participants, 1,159 (86%) of whom agreed. We in...

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Hlavní autoři: Ludman, Evette J., Fullerton, Stephanie M., Spangler, Leslie, Trinidad, Susan Brown, Fujii, Monica M., Jarvik, Gail P., Larson, Eric B., Burke, Wylie
Médium: Artigo
Jazyk:Inglês
Vydáno: 2010
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Article
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3071850/
https://ncbi.nlm.nih.gov/pubmed/20831417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2010.5.3.9
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